Tomorrow June 21st is the Longest Day…Post, Get Active or Wear Purple

 

I go purple all of the time, purple has been my favorite color since I was a little girl and I guess you can say that now for the month of June I bleed purple. I’m sure my fraternity brothers of Omega Psi Phi are going wait a minute?,  (That’s one of their colors), but for Alzheimer’s I live it.

June is Alzheimer’s and Brain Awareness Month. One of three months (the others are Sept. – World Alzheimer’s Month and Nov. – National Alzheimer’s Disease Awareness Month) designated to further highlight this growing disease. Over five million Americans are living with this disease and that number is expected to jump to 75 million by 2050 and over 47 million people are living with dementia Worldwide.

  • It’s the 6th leading cause of death and the only one without a cure.
  • In the United States someone develops Alzheimer’s every 66 seconds.
  • In 2017, Alzheimer’s will cost the United States $259 billion. This number is expected to rise to over $1 trillion by 2050.
  • 15.9 million family and friends provide care to people with Alzheimer’s and other dementias in the United States.
  • The annual global cost of dementia is $818 billion in U.S. dollars.

Sadly, this illness is becoming a growing silent epidemic. Silent because it scares people to talk about a disease that can take your mind, have you forget almost everyone and everything that you know, decrease your ability for self-care and one that currently has no cure. But those of us who advocate for the afflicted and their caregivers, as I once was, are fighting every day to remove the stigma, to provide hope and compassion and work every day to end alz.

So what will you do? Will you add the “I Go Purple” frame to your Facebook profile picture? Will you send one tweet, or share one Facebook or Instagram post that you stand with those who are fighting against Alzheimer’s? Will you participate in an activity tomorrow June 21st, that benefit’s the Alzheimer’s Association’s The Longest Day? Will you wear purple?

Your life doesn’t have to be affected directly to advocate, but I’m sure you know someone whose life has. Stand for and with them.

Tomorrow, June 21st, the  summer solstice, join in on one of the Alzheimer’s Association’s largest fundraisers, The Longest Day. The Longest Day is a day about love. Select any activity you love — or an activity loved by those affected — and team up with the Alzheimer’s Association to raise funds and awareness for care and support while advancing research toward the first survivor of Alzheimer’s.

All across the US there will be activities beginning tomorrow into the weekend. Lead, join or support a myriad of activities, from dancing, bowling, BBQs, and baking to card games, dinners, running and biking all in an effort to raise funds and awareness. If you would like to participate in a local activity or start one of your own click here.

To learn more about Alzheimer’s, caregiving, the Longest Day and/or fundraising, please feel free to contact me at mizzriv@gmail.com or visit the Alzheimer’s Association’s page.

If you’re posting support use these hashtags #ENDALZ #aworldwithoutalz #thelongestday.

And don’t forget to wear purple.

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NFL Players Tackle Alzheimer’s in the My Cause My Cleats Initiative

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During week13 of the NFL season you may have noticed player’s cleats looking a bit different, a bit unique, a bit custom.

As part of their new initiative, My Cause My Cleats, NFL players wore custom cleats to raises awareness and proceeds for the charities that they are passionate about.

Due to the success of the NFL’s annual Breast Cancer Awareness Month and its Salute to Service program, the use of custom cleats—pink for Breast Cancer Awareness and camouflage for Salute to Service—sparked an idea, and after talking with various players, the My Cause My Cleats initiative was born.

Anna Isaacson, the NFL’s senior vice president of social responsibility, mentioned to Bleacher Report this has been a concept two years in the making. “It was important to give players a platform for their stories to come out and be told. We also wanted to make sure there was a visual element to tell those stories.

Anyone who knows me, will know that football is my favorite sport and for the number of hits (no pun intended) that the NFL takes at times; I want to give them some love for this awesome initiative and for allowing a little fun with the uniforms.

If you’re looking to become an advocate for a cause, there are several foundations and charities represented by the players that provide a great launch point and I have included the pdf below that features most, if not all, of the players who participated in this campaign and their corresponding causes.

And though there are many great causes represented, I have to give a huge Thank You to David Amerson (#29) of the Oakland Raiders, Brandon Coleman (#16) and De’Vante Harris (#21) of the New Orleans Saints, Stephon Gilmore (#24) of the Buffalo Bills, Mike Iupati (#76) and Stefán Taylor (#30) of the Arizona Cardinals, who choose to stand up for Alzheimer’s and are giving a voice to end this disease.

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David Amerson’s cleats
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Brandon Coleman’s cleats

 

#ENDALZ

My Cause My Cleats

My Walk to End Alzheimer’s, NYC, October 18, 2015

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This year was the first year that I participated in the Alzheimer’s Association’s Walk to Remember in New York City. I was so excited to be walking in honor and memory of mother Susan Rivers and my Nana Reid. And though I had an excitement to be participating in this event, it was bittersweet because it also reminded me of my loss.

My team was or is rather Susie’s Stars because I’m rolling with the same name next year and I was able to raise over $800 in the short amount of time from when I decided to toss my hat into the walking ring! I was extremely humbled and grateful from the outpouring of love and donations that supported my efforts and the Alzheimer’s Association.

Here are some pictures from my day and my Instagram picture video at the end:

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With actor David Hyde Pierce

 

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Dogs for Alz

 

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The cast of Gotham

 

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The END of ALZHEIMERS starts with ME!

 

Susie’s Stars will Walk to End Alzheimer’s, please join or donate

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Well I’m finally walking the walk and I registered for the Walk to End Alzheimer’s in New York City on October 18th and I am Team Captain of Susie’s Stars in honor of my mom, Susan Ann Rivers. For a while I was on the fence about a name; wondering if I should include my grandmother’s name in my team name, yes, no….which all leads to over thinking and then into no movement. I needed to restart and get this train moving forward because time is ticking away.

And so I give you Susie’s Stars. If you would like to donate to my walk and/or join my team, please go to my page link, http://act.alz.org/site/TR/Walk2015/NY-NewYorkCity?px=10128655&pg=personal&fr_id=7680. Or you can read my story below:

Hello,

Did you know that every 67 seconds a brain develops Alzheimer’s? And that women account for almost two thirds of Americans with the disease and more than 60% of Alzheimer’s and dementia caregivers.

As a woman and former caregiver to my mother Susan, I saw firsthand how this disease changed the vibrant person I knew, who loved being a wife, mother, and friend; loved working with children as she had in her 30+ yrs teaching career; loved baking, knitting, crafting and helping anyone in need, into a woman slowly losing her ability to know the people and do the things that she loved the most. Each day was a new hello with changes and challenges that sadly ended in April 2012. But my experience sparked me to become a voice, blogger and advocate for those living with AD and for the caregivers to these loved ones.

On Sunday, October 18th, 2015, I will be participating in the Walk to End Alzheimer’s. Sign up to walk on my team, Susie’s Stars, and/or make a donation to help the Alzheimer’s Association raise awareness and funds to fight this disease.

Together we can make an impact to wipe out Alzheimer’s!

Thank you for your love and support!

Pamela

I’m participating in the walk on Sunday, Oct. 18th in Riverside Park @ 97th Street, NYC. The walk ceremony is at 10am and the walk starts at 11am. All proceeds benefit the Alzheimer’s Association.

 

Pamela