National Alzheimer’s Disease Awareness & Family Caregiver Month

Another November is here and another November where advocates and families of loved ones with Alzheimer’s or those serving as Caregivers to someone with Alz is in the continues trenches for a cure. We’re always at work, but November, our dedicated month is time to shine brighter, walk further, and  advocate harder.

My day one was spent doing social media outreach, networking and letting people on those outlets to look out, because I will be bombarding them with information. But not bombarding you all mindlessly, but to hopefully to provide information that will be enlightening, empowering, and of course mixed in with some fun.

I also listened to most of the Women’s Alzheimer’s Movement’s live stream today ( I was at work so I had to listen when I could, LOL). Great panelists, great information, some I was able to jot down quickly and for what I missed, I will go back and get. If you missed it I caught it on Maria Shriver’s Facebook page.

It’s only day one, and I know how I can get, I want to keep going and going as ideas and to-do’s pop into my head. I’m in full-on information overload, which I need to sort out to bring you the best information that I can. And in the meantime, I wish you all a healthful brain day and month.

 

 

 

Advertisements

Why?…. A Revisit

*** November is National Alzheimer’s Disease Awareness and Caregivers Month. While I’m gearing up to be my best next month, I wanted to share again, from seven years ago, on why I started this mission. My post appropriately is called “Why”.

Why?

In the past two years my life has seen some incredible changes, losses, gains, opportunities and harsh realities. And being a writer, yes I can stand firm on that statement now; several people have said I need to write about my life experiences. Mainly about what has become the hardest thing in my life; being a full-time caregiver to my mother who has Alzheimer’s.

I was given the great idea by several people to write about my experience, but when it came time to put pen to paper or rather fingers to keyboard, my head would start swirling and I couldn’t find myself to do it. I LOVE to write, I believe I’m good at it and Lord knows I always have something to say or to contribute, but I couldn’t find it within myself to write about this.  After some self-analysis, I realized it was hard for several reasons. For one if I wrote on how I truly felt, some people’s feelings may get hurt in reading my blog, secondly, my emotions were too great most times and I’d find myself, upset, angry and crying; all things which have made me a heck of a poet, but was a block and I wasn’t sure if I wanted to write about what has been all consuming in my life. I needed an outlet away from caregiving and writing about it put me right where I didn’t want to be. But they say the best thing is to write about what you know.

After more whispers from people, I decided to take their advice and convince myself to do it. I’m still angry. Alzheimer’s is a hell of a disease, and I know there are many great programs such as the Alzheimer’s Association for information and advice. But I’m angry because in keeping it real, too much is sugar-coated and there is such a lack of true help (physically and financially) for caregivers. That latter part is why I decided a few months ago to form a foundation for caregivers (details forthcoming).

As I’m stepping my toe into the water, I hope I can be a voice of strength and a shoulder to lean on for other caregivers and that this blog can grow to be an outlet of information and a place for understanding. I’m not here to bash anyone or any organization, but in keeping it real, maybe I can give some light to those who say they understand and have empathy, but truly don’t know how life is because they haven’t experienced being a caretaker.  Whether it’s caring for someone with Alzheimer’s, cancer, aids, stroke or other health related issues, I know my experience is and will be different from someone else’s, but there are several shared experiences and emotions and hopefully this will let others know we’re not alone. Hang on help is here!!

Thank you for taking this journey with me…until my next post.

xo

I am featured in Heart & Soul Magazine

Great News to share!

I was asked by the national women’s fitness magazine, Heart & Soul to write a piece on Alzheimer’s. As an advocate you know it’s my mission to do my part to get information out and support and resources in. I was truly honored to have this opportunity to be a voice for caregivers and share my pearls of wisdom to shed light on this awful disease. There are caregivers, advocates and readers counting on me and I accept the challenge.

Get the latest issue or read the article here:  Alzheimer’s .

 

 

I’m Featured in… Caregiver Connection’s Ask the Experts

As an influencer and advocate it’s always an honor to be asked to contribute my pearls of wisdom with other readers, caregivers and caregivers-to-be. Hopefully my shared experience and the tips I offer will allow you to be the best version of yourself in this role.

Here’s a snip-it from the article:

Ask the Experts: Tips Every Caregiver Should Know About

Caregiving is one of the most rewarding industries you could get into, yet it is also difficult at times. If you feel overwhelmed or frustrated sometimes, you are not alone. However, you can make it easier for yourself by seeking out advice from others in the industry. If you learn to manage stress and know where to go to for advice, it makes such a big difference in your caregiving career.

We reached out to several expert caregivers for you, to see what advice they think every caregiver should have.

Read the full article here: Ask the Experts: Tips Every Caregiver Should Know About.