Two Months…Too Long

writer thinker

Well I’ve slacked on writing on Confessions and I feel terrible. I love this blog, I love the potential in it and how my words can reach and help others. In days past, I’ve pulled up the site only to stare at the screen and go what now and where. I feel terrible that I haven’t written anything that I’m plain ‘ole stuck….stuck in my head. I’m a writer and this is not writer’s block, I think it’s life block.

I’m my own worse critic and when it comes to caregiving and Alzheimer’s advocacy there’s so much I want to do, I have my lists upon lists and when I feel, no, when I know I’m not doing enough with my writing or acting on my plans for advocacy, then well, I start spiraling and get back to stuck.

So this is my own kick in the butt……..AGAIN and I’m staring at the screen, but I’m going to write something even if it’s just hello.

Pamela

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Joey McIntyre Tells of Mom’s Alzheimer’s Battle

joey-mcintyre-alzheimers-charity

DAN DOPERALSKI FOR VARIETYJoey McIntyre, yes that one from NKOTB, has been an Alzheimer’s Advocate ever since his mother was diagnosed with the disease. Unfortunately for McIntyre she passed away last year, and like many of us who are in the fight for awareness, a cure and raising funds, the fight continues after your loved one has passed. Perhaps you find yourself fighting even harder.

Joey McIntyre, yes that one from NKOTB, has been an Alzheimer’s Advocate ever since his mother was diagnosed with the disease. Unfortunately for McIntyre she passed away last year, and like many of us who are in the fight for awareness, a cure and raising funds, the fight continues after your loved one has passed. Perhaps you find yourself fighting even harder.

Last night, 3/18/15, he was honored as the Caregiver of the Year at the 23rd annual “A Night at Sardi’s” fundraiser for the Alzheimer’s Association in Beverly Hills, CA. Here’s an article that was in Variety.com about McIntyre’s journey.

By Seth Kelley

In 2013, musician and actor Joey McIntyre finished the Boston Marathon five minutes before the bombs went off at the finish line. Although he raised $40,000 for the Alzheimer’s Assn. by participating in the race, he couldn’t prevent a bomb from going off in his own life.

McIntyre has been running ever since his mother, Katherine, was diagnosed with Alzheimer’s years earlier; she died from the disease late last year. On March 18 at the Beverly Hilton, the New Kids on the Block member and co-star of the Boston-set CBS sitcom “The McCarthys” will be honored as the Caregiver of the Year at the 23rd annual “A Night at Sardi’s” fundraiser for the Alzheimer’s Assn.

The event, which has raised more than $25 million over the years, also is honoring the filmmakers and cast of “Still Alice,” which stars Oscar winner Julianne Moore as a linguistics professor battling the disease.

This year’s event is expected to include performances from Jim Parsons, Josh Gad and Beth Behrs, among many others.

McIntyre, who describes his mom as a “one-woman show,” said it was hard watching the woman he knew so well fight Alzheimer’s. “It’s difficult to accept watching your parent suffer from this kind of a disease,” said McIntyre, who explained that his mother loved the theater, so when the early stages of the illness caused her to act out, he thought she was just being dramatic. But when she got scared about what was happening, he knew something was wrong.

“She would get frightened and paranoid,” he said. “I had never seen my mother like that.”

The native Bostonian, who finished last year’s marathon in just over 3:48 while raising more money for the Alzheimer’s org, is no stranger to “A Night at Sardi’s,” having performed at the fundraiser. He says he’s flattered and humbled to accept his award on behalf of those who continue to battle the illness.

“I’m here to do whatever I can to find a cure for this disease,” he said resolutely. “I look forward to a day without Alzheimer’s.”

 

Read the piece online here: Variety.com

 

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Happy St. Patrick’s Day

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Hello Everyone…

Sorry to be a little neglectful here, I’ve been working on a little writing project which I’ll let you know about when it’s published, but in the mean time, I’ve been keeping the awareness going on Instagram with a new series I call “Designed in Purple” where I highlight the fierce and fabulous in purple to shine more light on Alzheimer’s. I show mostly fashion, but the people, products or companies shown I do state in my disclaimer that I’m NOT saying they support Alzheimer’s, but I use the color to bring awareness to this disease.

I will post my purple IG’s on here and will keep adding to it. In the meantime, it’s back to the business of Caregiving and Alzheimer’s news, fundraising and blogging about what pops in my head.

Wishing you a Happy St. Patrick’s Day because aren’t we all Irish today! And to my sister from another mother in Ireland, Samantha Howe aka Purple_Nellie who is a caregiver to her mother, I’m sending love from across pond!

P.S. I’m MizzRiv

Pamela

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Julianne Moore’s Oscar win shines light on Alzheimer’s Disease

julianne-moore-oscar-win

photo credit: Variety

The Academy Awards did a lot for the Alzheimer’s community last night. Leading up to the big awards show, there was plenty of buzz from the Golden Globes to the SAG Awards, on Julianne Moore’s performance in Still Alice; a movie about a renowned professor’s battle and journey with early onset Alzheimer’s disease. Based on the New York Times bestselling novel by Lisa Genova. Still Alice, many of us hoped would instill conversation and action to find a cure and bring awareness to this disease.

Well conversations started, and Moore scored the win for her performance as Alice. She has given many great performances, stretching herself in roles that ranged from playing a lesbian mother in The Kids are Alright to introducing herself to younger audiences as President Alma Coin in The Hunger Games: Mockingjay Part 1; but her first Oscar win comes from playing a woman with Alzheimer’s, a most stigmatized and non-curable disease….how about that!

As Moore’s name was announced I couldn’t help but tear up. Her win was a win for us all. For those with Alzheimer’s and those caring for loved ones with the disease. Her work was our win, our hope that finally Alzheimer’s is getting it’s due, it’s grace, it’s notice and as she said it’s shine.

As Moore said in her acceptance speech, “I am happy, thrilled actually that we were able to shine some light on Alzheimer’s disease.”

I believe this win gives people the permission to talk about Alzheimer’s freely and not just behind closed doors. This Oscar win says I see your great performance and I bring attention to what so many people are dealing with every day.

Well at least that’s what I hear.  Those who are advocates already had the torch lit, this new light gives us more fuel for the fire. It’s time to take more than our 15 minutes. Because the facts are someone gets Alzheimer’s every 67 seconds. A woman in her 60’s is twice as likely to get it as she is to get breast cancer. Women make up 65 percent of all those who get Alzheimer’s and they’re nearly two-thirds of all the caregivers in this country. And Alzheimer is the sixth leading cause of death and the only one without a cure.

If you would like to know more about Alzheimer’s or lend your support visit the following sites and blogs:

Alzheimer’s Associate at http://www.alz.org/

Join in support, and join Shonda Rhymes and Lauren Miller and sign up for the “My Brain Matters” campaign, go here: https://mybrain.alz.org/still-alice.asp?_ga=1.209845781.1299170632.1414167853

Maria Shriver’s Wipe Out Alzheimer’s campaign here: http://wipeoutalzheimers.org/

Leeza Gibbons Care Connections: http://www.leezascareconnection.org/

The Purple Elephant: http://thepurpleelephant.org/

Kristen Cusato: http://www.kristencusato.com/

Hilgos Foundation: https://irememberbetterwhenipaint.wordpress.com/about/

Memory Ball: http://memoryball.org/

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